The need for registry-based research will become more important in the future. Therefore it is important to invest in high quality registries.
Our working group facilitates the establishment of cardiovascular registries and the interoperability of these registries. The Netherlands Heart Registry (Nederlandse Hart Registratie, NHR) - one of the DCVA partners - plays a key role in this.
At the moment we’re involved in the development of national registries on atrial fibrillation and heart failure (RITS-project), and merging existing congenital and inherited heart disease registries (e.g. Kincor, Concor, Gencor, Oncor, pulmocor). We are also working on the interoperability of the data of the NHR and the data of the health insurances companies.
Download the overview of available data sources